The HAE Society of India was founded in February, 2021 with an aim to increase awareness and to promote knowledge about HAE amongst physicians, to improve quality of life of patients and bring better treatment options in India.
The main objectives of the society are:
To serve as advocates for patients with Hereditary Angioedema (HAE) and help their families with reference to attainment of optimal physical, mental, psychological and social health.
To encourage and advance the knowledge, study and practice of the management of HAE in all possible ways.
To promote scientific collaboration amongst members who are devoted for serving HAE and make rules regarding standards for their professional conduct.
To organize, establish, conduct, superintend or control institutions for promoting directly or indirectly, practice, study and research in HAE
To try and establish and maintain preliminary brochures on HAE, reading rooms, laboratories and research centers for the promotion of its objectives.
To provide facilities to students, scholars and institutions for the study of or research in any of its aspects by way of scholarships, fellowships, grants, endowments, etc.
To fund, maintain or award, either itself or in co-operation with other bodies or persons fellowships, prizes, certificates, and diplomas of proficiency in the study of HAE and conduct such tests, examinations or other scrutiny as may be prescribed from time to time.
To print and publish official journals of the society, books, periodicals or publications on HAE, which the society thinks desirable for the promotion of its objectives.
To train personnel for carrying out the objectives of the society and to incur necessary expenses for the purpose.
To organize conferences, lectures, meetings, seminars, CMEs, exhibitions for the promotion of its objectives in all states of India.
To facilitate formation of branches of the society whether in India or elsewhere, for promoting all or any of the objectives of the society.
To consider and express its views on etiology, genetic studies, management of HAE and to study, suggest, criticize or otherwise, advise or take part in the framing of laws affecting the science and practice of management of HAE.
To co-operate, affiliate with other bodies and also to engage in such other forms of activities as may be decided upon by the society from time to time for the purpose of carrying out all or any of the objects of the society.
Supervising and advising on legislation affecting patients with HAE.
Co-operating with HAE international (HAEi), Global Allergy and Asthma European Network (GA2LEN), Angioedema Centre of Reference and Excellence (ACARE) and other medical societies/associations as and when considered necessary.
4th National Conference of HAE Society of India (HAESICON)